After settling in and adjusting our rhythm to the new conditions, we began our work as a family to create the healthiest and most supportive environment we can for our dearest caveman 🙂
The aspect that we immediately focused on is connecting Emil to all possible options of continued care. In doing so we have began to realize what a daunting task this is, as the first appointment we could book with our family doctor was a week after we arrived…
From then on, this has been the common theme for all following appointments and referrals…
The stroke clinic took another week before he could go in for an assessment.
Stroke rehabilitation has programmed his first appointment for speech evaluation at the of May! This is by far the most crucial help he needs right now and it is quite discouraging to have no guarantee of prompt and readily available assistance.
His first cardiologist appointment is not due for another month…
To say that we are frustrated by this and feeling helpless is an understatement.
We have been repeatedly told by the doctors in Loma Linda that the first 3 months are the most important as far as therapy is concerned.
At this point we are doing our best to provide him with home therapy. We have been studying and researching ever available method of home therapy. Different software, books, specialist recommended techniques, we are trying everything.
Emil’s speech is getting better every day, but the size of his stroke combined with the complexity of a multilingual high IQ brain is definitely a challenge. Simple methods are not very efficient when you have 5 different versions of the same word in 5 different languages. He is very determined to recover completely though and that is the best weapon we have on this journey of healing
It has been trying for us as a family to juggle all aspects of life while putting the main focus on Emil, but the continued support of close friends and the prayers that are sent our way every day have been a huge pillar of strength in this process.